THIS Purple Day, Epilepsy Action Australia has set the bar high, aiming to raise $250,000 – one dollar for every person diagnosed with epilepsy in Australia – to go towards creating a range of cutting-edge technology solutions and e-Resources.
Purple Day, held on 26 March, is a global initiative dedicated to raising epilepsy awareness.
Every year, Epilepsy Action Australia works to bring the condition out of the shadows and increase awareness of the impact that this condition can have on individuals and families.
While epilepsy is more common than Parkinson’s, cerebral palsy and muscular dystrophy combined, it is widely misunderstood.
“Epilepsy occurs on a spectrum, like autism,” Epilepsy Action Australia chief executive officer Carol Ireland said.
“In some cases, it is genetic, but epilepsy can also be acquired by things such as head injury, infection or stroke, and it can occur at any point in a person’s life, from infancy to old age.
“Many people do not know why they have epilepsy.
“Epilepsy also varies in severity and frequency from person to person and seizures differ as well, from a momentary pause and staring into space to full body convulsions.
“In fact, there are actually about 40 different types of epilepsy which can either involve the whole brain or part of the brain.”
Ms Ireland said what they heard every day from people with epilepsy was a real desire to maintain as much control as possible while living with what could be a very out-of-control condition.
“Technology can be a real life-changer in this regard for better communication, improved care and, ultimately, better quality of life,” she said.
“For this reason, Epilepsy Action is committed to being at the forefront of cutting-edge solutions for managing epilepsy and putting the power at the fingertips of those living with the condition
“We are in the advanced stages of exploring a range of apps to assist with seizure management, telehealth and better clinical consultations with GPs and specialists.
“What we desperately need is funds to go towards getting incredible resources off the ground and working to improve the lives of those living with epilepsy.
“We encourage the Australian public to get behind us in any way possible this Purple Day on 26 March to reach our $250,000 goal.”
Epilepsy Action is encouraging all Australians to get involved in Purple Day this year to raise funds and awareness, with some ideas including hosting a fundraising event, getting your school involved, buying Epilepsy Action Australia merchandise to show support and start conversations, or make a donation online or phone 1300 374 537.
Caption: Purple Day, the global epilepsy awareness initiative, will be held on 26 March.