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Battling the “mucus monster”

TASMANIANS like three-year-old Scarlett Fox who are living with cystic fibrosis can breathe a little easier thanks to an Aurora Energy Community Grant.

The energy retailer is helping to reduce the financial burden by funding 41 brand new nebulisers and spare parts, which can assist in controlling symptoms for patients living with the incurable disease.

Cystic Fibrosis Tasmania (CFT) recently received $5000 from Aurora Energy’s inaugural round of community grants to deliver its ‘Fighting the Mucus Monster’ program.

Cystic fibrosis is a life-shortening disease that causes sticky mucus to build up in the patient’s lungs, making breathing difficult.

CFT helps young patients understand the disease through a character called the ‘mucus monster’ – a villain that they have to fight to avoid infection, which leads to decreased lung function.

Regular airway clearance using the nebulisers is the most significant weapon in the battle against cystic fibrosis, however each device comes at a hefty cost and does not attract any subsidies.

CFT executive officer Paula Wriedt said the lifespan of nebulisers were limited due to the amount they were used – up to two hours per day, inhaling antibiotics and saline solution to make breathing a little easier.

“This grant from Aurora Energy has enabled us to update our equipment to give to people living with cystic fibrosis and ensures they have the device they need as their condition changes,” she said.

“Living with cystic fibrosis is emotionally, financially and physically draining and CFT provides this potentially life-saving equipment to help reduce some of the burden on our members and their families.”

Aurora Energy chief executive officer Rebecca Kardos said the energy retailer was proud to support a program that makes a real difference in the lives of vulnerable Tasmanians.

“Our Community Grants Program is specifically designed to help organisations like CFT invest in practical solutions,” she said.

“Knowing that our contribution will make the day-to-day lives of Tasmanians living with cystic fibrosis that little bit easier puts a big smile on our faces.”

Other grant recipients were Cancer Council Tasmania, Choir of High Hopes Hobart, Launceston Women’s Shelter, Whitelion and Zeehan Neighbourhood Centre.

Aurora Energy’s next round of Community Grants will open on 30 April 2018.

More information on the Community Grants can be found at auroraenergy.com.au/about/community.

Caption: From left, Aurora Energy chief executive officer Rebecca Kardos, Scarlett Fox with mum Sam and sister Harriet, and Cystic Fibrosis Tasmania executive officer Paula Wriedt.

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About the Author: Eastern Shore Sun

The Eastern Shore Sun is your monthly community newspaper, reaching over 30,000 homes and businesses in the communities of Clarence and Sorell. It is the product of Nicolas Turner, Justine Brazil, Ben Hope, Simon Andrews, Tobias Hinds and guest contributors, with support from advertisers.

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